Patients’ and caregivers’ stories can make a difference to doctors, physicians and researchers - John encourages the sharing of experiences

Transcript

So if you’re curious and you’re interested, go for it. Take the Patient Involved in Research course. It’s a great start. Hopefully by then there’s some boot camps. But you’ve got something, if there’s an interest it means you have something to say. You’re coming with experience whether a caregiver or a patient, right? Oftentimes hospitals, doctors, physicians, researchers don’t know those experiences. They haven’t had them. They know how to treat, but they don’t know what the impact of that is on your life. And that’s what people need to hear and they need to know what kind of treatments actually work for you. 

And what’s important in your life. And my hope, I’m excited about, and we’re not going to go there, is value-based health care. Right? And we’re not going to go there for money, right? When it should be the opposite. That’s where we should be going right away for – to reduce costs. But, I think patients can add to that. Right? Because patients need to demand who provides good care and where can I go for really good care? And who provides crappy care? And if they’re providing crappy care, why are they still in business, right? And if we’re not going to do outcome research and publish it then one of the ways of getting at that is patient stories, right?

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